Monday, December 31, 2007

2008 A Peace Odyssey & Year of Rat (EARTH)


With a new year approaching I'm not going to bore you with some silly resolutions; matter of fact I don't recall ever playing that game. Don't get drunk on the eve of, don't watch the parades or football games or fireworks off the Seattle Space Needle. Oh, I'll hear them, hear the car alarms go off, panicked dogs barking, hear the drunken hoards outside my apartment window as they laugh, sing off-key, vomit, and make any loud vocal noise they can. I'd say, "Sorry, don't get it," but I don't owe anyone an apology.


Don't get me wrong, you celebrate as you wish with my support, and I definitely observe the beginning of 2008, along with the ending of 2007; but I do so with quiet contemplation. Of course, I'm not 21 anymore, never a drinker, but have seen parades and fireworks, stayed up to kiss at the strike of midnight---my time has come to need more. I am not easily bored, except by crowds of people trying desperately not to feel bored.

What excites me is examining the year that is about to end. So much happened in my life and with those who entered and left. I'm still feeling my way around a world without certain people in it. I was given so many precious gifts this year and then had some pulled as swiftly from under my feet as they arrived. Not a big believer in "accidents," the reasons for my good fortune have yet to be understood. "Why me?" "Why this?" "Why now?" I don't believe a God holds the answer; I believe it is an answer I alone must conclude. I look forward to finding some answers in 2008. My hope is that each person finds the light that makes them special, makes them stand apart from the crowd. Speak and act your truth. No one else but you can.

2007 was a difficult, but rewarding year; I speak personally as a blogger, not globally. (THAT would be another type of post.) My health has been fine, just that MS business, oh, and the heart click still need to be checked, oh, and the eye glass screw-up I still need to correct; small issues in the scheme of things. I am determined to walk in 2008, farther, faster, better, stronger; get my biceps to rip more, keep the same home health care aide for a full year.

I'm really looking forward to next year's posts. Here is a teaser: murder, mystery deaths, love affairs gone wrong, insane asylums, sexual harassment in the government, circus "freaks," nursing home and hospice nightmares, horrible doctors, wonderful doctors, sex, puppies, the joy of being a child, MS, Cancer, pharmaceutical scandals, Seattle scandals, and of course breaking news and fact stranger than fiction stories---to name a few.

So, thanks all who stopped by my blog and thanks to all those who allowed me to enjoy and comment on your insightful and fun posts. May your new year be full of joy and adventure.

May we all have a 2008 that holds peace at the top of a pyramid, with love forming the foundation. HAPPY NEW YEAR!!

Sunday, December 30, 2007

OFF TO OZ WE GO

In Dec. of 1999, the World Trade Organization met in Seattle. The police knew there would be protesters, but still they were unprepared for the magnitude of the event. The police tried different tactics, but ended up driving the angry protesters from downtown Seattle to my neighborhood called “Capitol Hill.”

Capitol Hill was once home to the elite of Seattle and their mansions. The mansions still stand, but they are joined by low-income housing projects, many apartment buildings and with the influx of gay Americans much urban renewal. It became known as the gay part of Seattle. So, the “Hill” was a good mix of ethnic groups, economic groups, and many gay people.

This, the police decided, was the perfect place to shove the protesters to.
It was about 9PM when I started hearing sounds of people, many people, shouting, the screaming; and then the sound of gun shots outside my third floor window. My apartment building is on a very quiet street, one block on all sides are residential homes.

The gun shot sounds turned to bomb sounds. The protestors were screaming, “Help us! Somebody let us in!” I saw some running to the two-story apartment building across the street and trying to break in, climb the walls, anything to take refuge.

I turned on the TV news and a reporter from our local station was, “Live.” from “corner of…” (A few blocks from me) “…everything is quiet here,” she said. I called the TV station and told them that I had just seen their lie on TV and everything is HELL here. I then held the phone so he could here the explosions. He took my address.

Then I called the police, who told me there was nothing to worry about, “…just tape your windows and put towels or rugs around the doors, to keep the gas out.” Then she hung up on me. I called back to speak to a supervisor; was hung up on. I called my boss, the mayor of Seattle, his phone message was, “full.” Hang up.

The ear-shattering, car alarm engaging, window shaking, frightening explosions went on for over an hour. My partner and I huddled in our den without windows; hoping no one would break in and the gas would not adversely affect either of our neurological conditions.

Many news articles would be written about all this. Public hearings would be held. The police would be called to testify, some would be fired, photos and testimonies would show a horrendous act of police stupidity and aggression toward the innocent. I would complete a complaint form, along with many of my neighbors. Filed where all such complaint forms go.

I am so happy that we have so many bloggers now. I would trust their “Live” reports before I would ever trust the media moguls and just out of college reporter wannabees. So many untold stories from average Seattle residents that horrible night. A police state on my street. You don’t think things like this can happen in America. A city like New Orleans can’t be destroyed, people homeless, not in America. Our soldiers won’t be denied pay raises, not in America. We are not in a recession. We fight in Iraq because they attacked NYC. We keep religion separate from politics. The F.B.I and C.I A. are shining stars, our protectors. We are off to see the wizard, aren’t we?

Darn.

Saturday, December 29, 2007

BUSH/CHENEY:VERMONT SAYS: IMPEACH!

Vermont Senators voted yesterday to Impeach

Pres.Bush and VP Cheney!!! 16-9

LET'S GET THIS PARTY STARTED.

Bush has never been to Vermont. If he goes NOW he may be arrested for war crimes.

Cough, Hack, I FEEL LIKE BILL the CAT

Well, I knew if I kept saying it enough (that I "never" get a cold) I was destined to get one. Apparently I have a cold. Spousal equivalent brought it home after breakfast with a friend who had "cough," and "all my kids and husband have it too."

Now my care giver left to celebrate with her kids and family over the mountains; she had sore throat as she left. 'Tis the season to spread good cheer and germs.

So now I know what a cold is. Coughing, nose dripping one day and the next can not be used as a nose was meant t be used--TO BREATHE. You search "medicine drawer"( after 28 years of sinful bliss, never knew we HAD one, apparently we have a "medicine cabinet," as well!)--so, I find a box of something that says it will help my cold, "Sudafed PE." Suddenly a memory shoves some sinus crap aside in my brain and I recall asking for cold medicine for partner at the store we have been shopping at for 15 years and being told they had to "get the KEY."

HUH? You lock up cold medicine now? "Junkies." The pimple-faced teen waltzes past 1,000 bottles of wines and beer, Vodka, Whiskey; to get THE KEY.

"Do you lock up the Elmer's Glue too?" I jest. He doesn't find me funny. But, I digress.

The Sudafed has expired two years ago. Spousal equivalent, who is my drug-guru , tells me it is fine to take. I do so and I can't breathe, but throat insists I cough while nose decides it wants to sneeze. EXPLOSION of epic proportions happens as all my openings to the insides of my body join in some sinister solidarity to TAKE ME OUT. I start grabbing for kleenex, water, aspirin, my power chair; head for low ground (the loo) and yell out (actually my yell sounds like a raspy whisper now) for partner to not be scared when I yell.(I yell when weak and doing transfers, like a weight-lifter needs to do, and that one "Uerff" tennis player woman.) So, she is prepared and all that is heard is a whispered,"uh." We both start laughing and this knocks me on my rear with a thud, in my chair.

Being told I will get dehydrated, I grab an apple on my way to loo where I have a coughing spell that begs the question: where the H did YOU come from? Then I give birth to Mr. Hanky Jr. My eyes began watering, knocked my glasses off, my cell phone in my power chair pocket rings, "Meow,"(don't ask) as I reach for it I knock over my uncapped bottle of water and boy, did it make a funny splashing/thud sound; cell stopped meowing...I was exhausted and again could not breathe. Spousal equivalent is telling me to drink a potion she has called, "Tussin," fine.

As I reach to flush Hanky bye-bye (tough love), there in the bowl is my apple! Big, fat, apple, "HonEEE" Together, 1-1/2 college graduates figure out we shall (I shall) put on plastic nursy gloves from her secret stash and grab apple.

Tussin made me cough up something only Bill the Cat could love. Then I drank hot green tea and fell asleep. Woke up FINE! For five minutes, then it all began again. Except the apple; I am relegated to Odwalla Green Food, V-8, and grapes.

So this is a cold. Humphf. Rather a pain in the astronomical sign. How long will this repeat? I am down 2 boxes of tissues, 1 bottle aspirin(was getting low), 3 bags of green tea, 2 V-8s, 1 full bottle of water, 1 expired box of Sudafed (tossed it), and one sad, innocent apple.

Yum, I just had an iced mocha. I think I've found the cure for the commoner's cold!

Friday, December 28, 2007

From The Angry Black Woman Blog

Dear Religious Black People
Posted on November 9, 2007 by the angry black woman :

Speaking as a black woman who was raised in the church (AME Zion, to be precise, but I have strong Baptist ancestry, too), speaking as a woman who is still deeply spiritual though no longer Christian, speaking as a woman who is queer, I have something to say: Knock it the fuck off.
I understand the tension between LGBT folks and Christianity, but what you need to understand is that this whole crap where you participate in bigotry, discrimination, and hate is not only un-Christian, it’s completely insane from people who not that long ago were considered a half step above gorillas by many people and are still considered such by a significant minority now.
I am well aware that we cannot compare the stuff that LGBT folks go through to what black folks and other ethnic minorities go through wholesale. There are some similarities, yes, and there are some major differences. This argument isn’t about that. It’s about the fact that you, as people who have and still suffer from the effects of hate, bigotry and oppression, do not seem to have any compassion or understanding for LGBT folks.
This is not true for all Christian black people, I know. If this isn’t true for you, then just know that I am not talking to you. I am most likely talking to the woman in the big hat behind you fanning herself. I am talking to the people who, despite the fact that we are in a serious crisis in this country that starts from the White House and trickles down on us all like urine, are still playing the You Have To Be Against Them To Be With Us game. It’s not cool.
Let me put it to you this way: Do you want a president who hates a whole group of people for an arbitrary reason? I know you may not think that sin is arbitrary, but I invite you to take a close look in the mirror before you start throwing stones (yes, that is me referencing the Bible). How many sins have you committed today, this week, this year? The whole point of protestant Christianity is that Jesus loves you and will forgive you if you repent. So, therefore, quit fucking worrying about what other people are doing. Or, if you can’t stop thinking about them, try projecting some love and compassion. You know, like Jesus would. But this whole prejudice thing? The whole not supporting a candidate because they won’t say “I hate those people”? That has got to stop.
No, I mean right now.
Love,ABW

http://theangryblackwoman.wordpress.com/

Thursday, December 27, 2007

Woman of the People Assassinated

Benazir Bhutto assassinated. She continued to go among the people, the poor, who loved her. Even though she had many death threats, she refused to stay away from the crowds who cam to get from her---hope. Their tears will not bring back such a generous woman who followed her destiny for the giving of hope.

Woman in Wheel Chair Stranded Alone at Airport

A woman in a wheel chair was taken from a U.S. Airways plane going from Las Vegas to Orlando, and was left alone outside the airport. An airport employee saw her sitting alone on the tarmac, pushed her inside then left her alone there. Her daughter was shown on TV news saying that she got a call from her hysterical mother at 3AM. Gee, doesn't it just make you want to fly? Those of us unable to walk are supposed to always be with someone. We are never supposed to go out on our own and try to live a normal life. Go to a medical exam alone and you run the risk of being left in a CT scanner, as 67 year old Elvira Tellez, a cancer patient, was in Sept. The person operating the CT forgot she was there and when she finally crawled out--the clinic doors were closed and locked for the night. Go for a flight and risk being left sitting in ON THE TARMAC. Jeanne Grettum finally arrived in Orlando, 12 hours late.

TRUE LOVE IS

True love is watching the Christmas gift you gave to your true love, "Blade Runner, Special Edition, with EIGHT HOURS of additional footage," on Christmas day. (Especially when you neither enjoy nor understand Sci-Fi; and you ALWAYS get in trouble by falling asleep early on, then waking up to ask, "What is this movie about again?")

Wednesday, December 26, 2007

SEATTLE ARCHITECTURE #3 of TIME TOP 10

TIME Magazine's Dec. 24, 2007 issue lists Seattle's new Olympic Sculpture Park as #3 in their top ten best Architectural Marvels. Built on an old industrial site near Seattle's Elliot Bay waterfront, it is extrordinary in its placing and keeps to Seattle's reputation of art in public areas. A long, leisurly stroll is necesarry to observe and appreciate all the unique pieces; and the intricate pathway that designers Marion Weiss and Michael Manfredi have used to combine the beauty of Seattle's waterfront with thought-provoking art.

Tuesday, December 25, 2007

SNOW IN SEATTLE AGAIN: PIGEONS RULE


Once again we got snow, snow for Christmas. I'll say. And once again it began with about FIFTY PIGEONS walking, yes, walking across our front street...how odd. Quite a sight to behold, and then within a few hours comes SNOW! Now, after people accept it, out come the UMBRELLAS. I am from Indiana/Michigan, and this umbrellas in snow is a sight I still can't get over. I guess it is because RAIN in Seattle, usually is like a light snow.

WHAT WOULD YOU DO IF YOU WON A BILLION?

My mother tells me she goes over this situation in her mind when she can't fall asleep.

I asked her what she would do. She said that she doesn't know because she always falls asleep so fast then and can't remember what she decided. When I call my mother on the phone, it is a laugh riot. Most of the long distance call to Indiana from Seattle, Washington is spent laughing,

Today I called to wish her a Merry Christmas, and basically check in on her. She was diagnosed with Alzheimer's, but she doubts it. Truly, after a year, her memory is still as good a it ever was. When I was a kid and she a single working mom, I would call her as soon as I got home from school each day. I always began with, "What are you doing?" which would make her laugh.

Now I start the calls with, "Hello Mother," to let her know it is her only daughter. So far so good. She slipped up just once today while telling me who would be at the Christmas Eve party at my brother's house. She started naming some of her grandkids, then said, "One is sick and can't come. Oh, THAT's YOU!" This drove us both to hysterics.

D(daughter-me): "Make sure to wash your hands, with all those kids around."

M(mom): "I'm going to say I can't hold the babies because my arms hurt."

D:"That's a good idea. I can't wait to get so old I can say what I want."

M:"Yeah, it comes in handy."

D:" You still need to keep your finger out of your nose and eyes, and wash your hands as soon as you get home."

M:"I TOLD you I'm not holding those babies."

D: "Germs, Mom. You get 'em from everything the kids touch, the door knobs, the dishes, the chair."

M: "Now you got me scared."

D: "Just wash your hands. Hey! Did you get the gift I sent?"

M: "What is it?"

D: "I'm not telling! Did you get a gift in the mail?"

M: "I don't remember. What was it?"

D: "Oh no you don't. You can't pull that on ME!"

M: "Tell me and I'll remember."

D" "You sly devil."

We both break out again in uproarious laughter.

M: "Was it books?"

D: "Yeeees."

M: "Yes! I got the. Thank you, I'm saving them for a rainy day."

RED FLAG I had wondered if she still could read and enjoy a paperback book, her usual gift request. Normally they would have been read by now.

D: "Mom, it's snowing, that is just thick rain."

We laugh. D: "You know laughter is the best medicine."

M: "Yep, that's what they say."

D: "It's true, they've researched it."

M: "WHO?"

D: "Scientists."

M: "Oh come on."

D: "It is true. Out here people meet in a big group outside just to laugh."

M: "No."

D: "Yes."

Much laughter.

M: "They are crazy out there."

D: "It's good exercise."

M: "Sure."

D: Well it is. Think about it, your abdominals contract, your heart beats faster, your blood pressure lowers."

M: "I have good blood pressure. I am very healthy."

D: Mom, you have Alzheimer's, Diabetes, and you told me that your new doctor said your blood pressure was too high."

M: "Oh, come on, I did?"

D: "Yes."

M: Well, then I better go outside and laugh, but I might get arrested."

Laughter.

D: "So what are you wearing tonight?"

M: "I found a nice red sweater."

D: "Where?"

M: "IN MY CLOSET, where do you think?"

D: "When did you buy it?"

M: "I've never seen it before, but it's really pretty."

D: "Well, see, there ya go-another good thing about Alzheimer's."

Wet our pants laughter.

M: "That's right. That's the way to look at it."

D: "You bet. Well, have fun tonight."

M: "Ok, thanks for calling."

D: "Merry Christmas."

M: "Same to you."



We will never have a billion dollars, but we've had a billion laughs together.

Sunday, December 23, 2007

My Oh My, DECLASSIFIED!

Isn't it fun when papers/records from previous U.S. administrations get "DECLASSIFIED?"
Oh, what fun we'll have. Some of the jolly ol' J. Edgar Hoover's plans show that he, like our current president, felt the need to suspend habeas corpus. He had about 12,000 Americans he suspected of disloyalty.

Hoover, what a man. He sicked his agents on FDR's wife and made her furious. His secret surveillance, he concluded, proved her to be a lesbian. He should know. His longtime companion to any and all events was a Mr. Tolson. When FDR died, Truman took charge and he wanted nothing to do with the out-of-control power freak, Hoover. Truman relegated Hoover to speaking ONLY to the Attorney General. Hoover saw his celebrity G-Man days coming to an end. To try an stick it to Truman, Hoover formed an alliance with House Un-American Activities Committee and Hollywood was up or grabs. I'm sure Lucille Ball was on his list.

The lists Hoover kept, I am sure carry the names of MANY more than 12,000 innocent Americans. By hook and crooks, by lies and cover-ups, Hoover was kept on with every president through Nixon, and only then did he die at age 77. He was hated by JFK, RFK, and he hated MLK. He was by all accounts a bigot, a homophobe, a murderer ( e.g. the suicide of actress Jean Seberg and miscarriage of her bi-racial baby, the father a Black Panther; pushed over the edge by Hoover's harrassment), a liar, and a power-starved man.
His influence on history is vast and the more we can get declassified--the better.

Funny this comes out just when the we learn that the F.B.I. will use ONE BILLION dollars to make a database on as many people's "physical characteristics," as they can.

Let us recall the game we learned as children: Connect the Dots, and let us see the big picture.

Quotes about Hoover from the men who admired his high morals: "...the earnest Christian soldier defending church, school, and home..." '"The very essence of our faith in democracy and our fellow man is rooted in a belief in a Supreme Being,' Hoover said. The religious underpinnings of Americanism, he said, consisted of a belief in the dignity of the individual, in mutual responsibility, in the concept of life as having a meaning that transcends political systems..."

Maybe it is time we stopped allowing our elected leaders to keep secrets. We can't afford to keep rewriting history books for schools as it is!

1960's Dreams of a Child's Mind

I am blogged out. Just finished watching "Guess Who's Coming to Dinner?" Last time I saw it was 1967, I was ten. It was HUGE deal back then. I begged my mom to take me and she did. We had an uncle just like Spencer Tracy, all gruff. He was racist. My great-uncle. One day my mom told him off at a restaurant. I was so proud of her; she was/is a quiet, non-confrontational person. I thought the world (USA) would change. We thought the 1960s were the beginning of a new day. Feminists, free-love, legal pot, "A Woman's Place is in the House and the Senate," Make love not war.

If you had told me then, how little would change, how much harder we would work for what seemed so close. "Ask not..." BAM! "I have a dream..." BAM! RFK-BAM! Harvey Milk-BAM!
By the '70s it was slipping away. Watching that movie on TV tonight, took me back briefly.
Anything seemed possible. All we had to do was change the hearts and minds of people. What could be simpler than that?

Saturday, December 22, 2007

MUST WHEEL CHAIRS COME WITH CAMERAS?


My approach to doctors is that I need a team. I am fortunate to reside in a big city, Seattle, WA, with a plethora of doctors. I am free to try them out and chose the best ones for me. Unfortunately, doctors retire, quit, move and so on; hence, since moving here in 1982 I have lost some team members. Putting the team together can be exhausting. I don't need to love the doctor. I need to be in love with the doctor.

Currently I have a Captain (my internist and "family doc"), a dentist, a tooth surgeon, a gynecologist/ovarian cancer guru, a cancer specialist, and a new neurologist I like but am not in love with after one visit. I'm recruiting for an eye doc, physical therapist, home care provider and cardiologist.

My requirements are thus: Intelligence, healthy looking, sense of humor, knowledgeable, and while I am with them I want to be the most important person in the world. When I leave, I want to feel better than when I arrived. Whether I'm told I have cancer or MS or they don't know---doesn't matter, it is about how they make me feel. Do they respect me? Do they take my complaints seriously or ignore them completely? What is their nature? They must show integrity. As their patient I will never expect anything that I can not give them in return.

Since my neurologist of 14 years unceremoniously dumped his entire practice without notice, my MS care has been thrown to the wolves. The search for a replacement, the search for any trust I once imparted to specialists, has been...educational. I will never again see a specialist alone. I will never ride an Access (Seattle van service run by county) Van alone again or even a Metro bus. Witnesses are required. That is how bad it is.

Visit http://www.nejm.org/ (The New England Journal of Medicine) and read the entire story of a man in a wheel chair who decided to record with camera his Dr. visits. He participated in the film "Rolling," by Gretchen Berland, MD, which included several other people with disabilities. One woman with MS was dropped off by her van service in front of her apt. building and left there; even though the driver knew her power chair had died on the van. Rules precluded the driver from moving her further. We watch her cries for help to no avail, as the sun sets.

When the film was shown at One World Berlin, a human rights film festival, members from the audience addressed the woman with, "Stay here." A German care giver I once had was aghast at the treatment I received here and told me, "That would never happen in Germany."

What does this say about the U.S.A.? Added to all that is happening in the global community, it says that we are no longer the best, the strongest. People from other countries are shocked to see the homeless and the poverty and the lost city of New Orleans. They can't believe how we treat our elderly. I can't either. I am still idealist enough to want to stay and work to make America better. Oh, yes, van and bus drivers hate me, doctors find me to be incorrigible, nurses and care givers have cursed at me. Taxi companies have slammed their phones on me. My own relatives think I am too outspoken.

Well, there will be no apology from me. This is MY home, MY country, MY fellow human beings, and as long as I can take a breath I will not go quietly to injustice, to lies and cruelty in the name of "rules."

There is a video clip of Vicki Elman sitting, scared, helpless and alone in her dead power chair. I wish I could tell her she is not alone and I once witnessed in Seattle, an Access Van drop off a woman in a wheel chair, at 6am-dark, many feet from her place of employment in a "bad" neighborhood; her darkened workplace not open yet, as she cried out, "PLEASE DON'T LEAVE ME, IT IS TOO EARLY." Door shutting, "Sorry lady."

My calls to the van service were not returned. My complaints and threats to the driver-ignored.
My own helplessness haunts me to this day.

So I applaud those who take cameras to Dr. appts.; I applaud Dr. Buckwalter, a man in a wheel chair, whose story of enlightenment gives me hope. His story is "The View From The Other Side---Patients, Doctors, And The Power Of A Camera." THE GOOD PATIENT

(Click on "Video" at right to view excerpts from "Rolling.")


Friday, December 21, 2007

A "Once" Movie to See

Why does this movie force me to recommend it to you? Why does the score, "Once," make me weep? Is it because my love of 28 years is of Slavic descent and I am of Irish? Is it because we, like the characters in the story, came together with the dream to collaborate our art of acting and film making? Am I just a sucker for a well-written, superbly cast, low-budget film that I can't take my eyes off? Is it because I am an incurable romantic? Perhaps it is all of the above.

"Once," starring Glen Hansard and Marketa Irglova is, in a nutshell, about a working stiff in Dublin who wants to make a living making music and the woman he meets who shares his dream. They fall in love. I know, same old-same old, but their is something so genuine, so hauntingly heart grabbing; you fall in love with the characters before they fall in love with each other.

Glen was playing the score, "Falling Slowly," (nominated for a Grammy) when the film's director asked him to audition for the lead. Glen was not a professional actor, but he had to agree that the character seemed to be written just for him. The chemistry was right between the leads; so right that they in fact fell in love and are now a couple.

Their music is so grabbing that Bob Dylan grabbed THEM to join him on tour as his lead in group. Glen says it is like a dream come true, surreal. If that were all...

A woman saw them preform (Glen plays acoustic guitar, Marketa plays piano, and they both sing.) and she couldn't get Glen out of her mind. He looked like her recently deceased husband with his red, curly hair; and she noticed that Glen's guitar was pretty old. Her husband also played and collected guitars. She wanted to give one to Glen.

Using the Internet, she was able to connect with him and he in turn insisted he meet and thank her in person. They had a nice chat and she gifted Glen with the best guitar he has ever had.
I have always believed life is about being ready for opportunities, and they are all around us. I also believe in fate and destiny. Glen, in a recent interview, feels the same way. I guess that is why I must recommend this movie. Fate.

"Once" is now available on DVD.

Thursday, December 20, 2007

SEATTLE MS HUB-A HUGE FLUB!

The great disappearing act of the often heralded Seattle "MS HUB" is a most interesting and disturbing mystery. I plan on a post regarding this displaced vision of a "State of the Art Facility" during the beginning of 2008. Anyone who has a story to tell about their experience with the fiasco can email me direct and let me know if you want to remain anonymous. Anyone wanting to defend the befuddled and muddled demise of the "MS HUB" in Seattle--this is your chance; and don't leave out the part about WHO Mr. Urydych (I'll get the correct spelling given in the Seattle Business Journal) IS.

stellarlife@yahoo.com

FALL DOWN GET UP

Many people with MS fall down. (Why must I state the obvious? You gonna fall up?)

Winter snow and ice in many areas like to slip us up, by knocking us down. (Oh, dear, this IS confusing!) Now that I am 50, with gray hair, and am called, "Ma'am," I shall give advice. Yes, whether you want it or not. (If you don't want it, then go google "dolphin doodles.")

I digress. When walking in snow/ice, use a cane with a sharp retractable (you don't want to scare the neighbors or get thrown off the bus for having a deadly weapon.) point. Wear strap-on cleats around your boots.

If/when the inevitable fall happens (My first one was like a slow motion out-of-body experience.) let your body go limp, roll with it. Try to land on a well nourished (that is a nice doctor's way of saying FAT) part of your body. Protect your head at all cost.

Live alone? Buy an alarm button you can wear around your neck (they come on a simple string, but you can always "pimp your ride", as the ones who call me "Ma'am" say, not 100% sure, but think it means to "fuss it up") or on your wrist. You fall, press it, a stranger's voice booms, " Can I help you?" you yell "Yes" or say nothing and the nice stranger will send help to get you up. Worth the $39.95/month. (Sorry, only have advice for falling, which I do well...so far; getting UP is another story, but at least if you fall safely then you will have a better chance of getting up with nothing hurt but your pride and laughing usually heals that hurty.)

My fave book on falling well is, "The Stuntwoman's Workout," which, given my inability to walk much , always gets a "Oh sure." roll of the eyes from spousal equivalent. HEY! Jumping over flaming cars, falling from a flying Batmobile, tripping over my MS foot---basically same idea: you fall down without killing yourself.

Finally, on slippery stairs face the railing, grab it like a punk's neck who calls you old, with both hands and go up or down SIDEWAYS, one silly step at a time. MOVE SIDEWAYS on slippery ground, bending a bit at the knees. If you must, just sit down and push yourself forward with your hands...hey, gets the job done in a pickle. HEY! Batman is SIXTY-EIGHT.

Wednesday, December 19, 2007

How Old is Middle Age?



Definition of "ELDERLY" per Merriam-Webster Dictionary: "past middle age."




What is middle age? If you listen to our two, er, many media outlets, you will learn that we will live to be 100, 78 at least. Of course, all the fresh faced baby boomers will easily surpass their parents in longevity! Hey, I got this bridge I can sell ya…

When I first began researching for this post I was bombarded with data collected by many governmental, organizational, spiritual, groups; all attempting to define middle age. They all had their own way of basing it on such things as morbidity data, autopsies, and interviews, on and on.

My thoughts will take all of that into consideration, all the data I could read without my eyeballs exploding; and add to it my own observations, as this has been an issue on my mind since, yes, since I was a child.

My great-aunt is soon to be 101 years old. My uncle is close to 99. My maternal grandfather lived into his 80’s and then there is my mother making it with diabetes and Alzheimer’s (maybe-one really can’t tell without autopsy) still strong at 79, my father dead at 56. Several of my friends from school had fathers who also died at 56. I don’t think any of my great-aunt’s siblings (6 in total) lived to 80, but they were all smokers and some drinkers; as were the 56yr old fathers who died. My point is, the response: “…died of old age.” is unacceptable to me. Everybody dies from something, a reason.

What I have noticed is disturbing because our media is delivering a futuristic view of my peer’s long and healthy life that does not match a truth that is staring me in the face. Too many of my peers are sick and/or disabled before 50! They are working with pain. They are using one or more prescription drugs. They are not sleeping well. They are stressed out, depressed, basically a mess.

My peers tend to exercise, eat and drink in moderation, have been very active in their 20’s (running, weight lifting, dancing, many partial vegans); so what gives? Diabetes, hip/knee replacements, thyroid problems, cancers, MS---our parents and grandparents were not dealing with such issues when THEY were in their 40s and 50s; in their 70s maybe. Yet, financial planners will tell us to prepare to live to be at least 85? If you are in your 50s now, what shape do you think you will REALLY be at 85?

Our “experts” base some of their predictions on the difference between our grandparents and great-grandparents longevity compared to our parents. We know that our parents (now, of course there will be exceptions, but I speak in general) are living into their 80’s. Many of us have become their caregivers or have been researching assisted living/nursing homes for them. Even many of our employer’s offer seminars to educate us in how to best handle this situation. Facilities to care for them are popping up faster than Orville Redenbacher's kernels.

Only since 1905 have statistics of mortality been released by the Census Bureau (by act of Congress the Census Bureau began in 1902). Unofficial census compiling began in the mid- 1800s with the first stats on births reported in 1870. Relying on family history is as good as the mish-mash of compiled data, using who knows what standards, and is sufficient to make some guesstimations on where we are now compared to our ancestors.

My friends, there is just not much difference once you remove plagues (which we are not immune to experiencing now) wars, natural disasters; we are living about as long as we have for hundreds, maybe thousands, of years.


Julius Caesar died at age 77, but only because he was murdered. His wife lived to 78. Pablo Picasso lived to be 92. Mary Pickford, the actress, died at 87. Rose Kennedy 104, authors the Delany sisters both over 100, Marjory Douglas, an environmentalist 108. Gong back to Greek philosophers (because much history was kept about them: Greek philosophers thought to have lived beyond the age of 90 (e.g.: Xenophanes of Colophon, c. 570/565 – c. 475/470 B.C.; Pyrrho of Ellis, c. 360 - c. 270 B.C.; Eratosthenes of Cirene c. 285 – c. 190 B.C., etc.). The story of Democritus, who died at age 90, differs from the story of, for example, Epimenides of Crete (VII, VI centuries B.C.) who is said to have lived an implausible 154, 157 or 290 years, depending on the source. I have two great-great uncles who lived to be 110 and 120, according to my great- aunt Vi.

Now again, I look at my peers. With all the medical advances we have made (especially antibiotics) since 570 B.C., WHY are we so unhealthy? WHY must we take so many drugs? WHY are so many spending their final years in nursing homes, sick, abused, depressed? WHY do I not hear the politicians speak of this big secret, even though many of their family members or they themselves have/had serious illnesses?

I keep asking my mom and aunt Vi, if their friends at 40-60 were so sick. No. Neither can still believe I have MS, had cancer, have so many ill friends.


After another 10-15 years, the reality of the lack of sturdiness in the baby boomer generation will be exposed. Then the media will be busting with, “What happened?” What we all should be demanding an answer to is: “What IS happening?” It is too late for us, but the next generation still has time…but only if we stop hiding our secret. The promises and dreams of a better tomorrow that we espoused in the 1960s has turned into miscalculations and unfounded hopes.

Even the U.S. infant mortality rate is something to be ashamed of when compared to other countries.

We are still at the mercy of our genes. Perhaps in the future (when death with dignity is the law of the land) we will be given a longevity gene at birth. When we know we have more time will we squander it more? I am 50 and years past middle age. My father was middle aged at 23.
While it is great to believe you are as young as you feel, I know too many 30 year old men who feel and act like they are 14. Some days I feel 90 (though I've never been 90, so...) and some days I feel 50. Aunt Vi used to say, at 85, that she hated to look in mirrors because an old lady looked back and she felt like she was 21. But only a fool would not see that Aunt Vi is an exception.

Let's not wait until it is to late to demand that researchers and medical pundits put their mouth where their mirror is.






Tuesday, December 18, 2007

7-Year Old Boy Beaten for Painting His Nails PINK

12/17/2007
In Orange County, Florida, a man was arrested for beating his girlfriend's SEVEN YEAR OLD son because the boy had used fingernail polish to paint his nails pink. Yes, this is America:Home of the Free, Land of the Brave. What could cause such rage in a man?

BLIND,LEGALLY BLIND-The Difference?

In 1979 little yellow stars began appearing in my field of vision. Rubbing, wiping, shutting them, nothing made them go away---until they simply went away. Onward.

Over the years they appeared then left and I got used to them. I remembered seeing them when I had to stand on my head in gym class after a pickup truck hit me in 1967.

In 1990 I went to my first MD about some knee pain, which I attributed to recent co-worker basketball games I had been playing in. After a tap to the knee sent it flying up to the doctor’s chin, he did more tests and asked if I ever had eye problems. When I answered, “Funny you should ask, I do occasionally see stars,” he said without hesitation: “You have MS.”

That led to an MRI, the DX, and within a few months I was legally blind.
The neurologist sat me in chair and had me cover one eye then the next.
“Read the letters.”
“Uh, I don’t see any.” (What kind of game was he playing?)
“Now?” he said calmly. (He said everything calmly.)
“Nope.”
“Now?”
“No.”
“Try scanning.”
(What?) “What?”
“Move your eye to the far right, then far left.”
Well, doggone if I didn’t…start…to see…someth
“I see something. I…an E.” Good grief, it was the largest E on the eye chart!
He the turned the lights on and sure enough, there was the big E.

I had a pin-hole of vision, and was losing it all fast. He prescribed Prednisone pills, which I took briefly; they gave me a feeling of “ill-health.”
I had read all I could by then about MS and knew optic neuritis was common and often resolved on its own. I took my chances with that and began planning in case my vision never got better.

So, for approx. a year I was “legally blind.” Couldn’t dial (yes, children, once you had to dial phones) the phone, read anything, cross streets alone, listen only to TV, worse-I could not see my loved one’s face. I kept working, faked a lot. Bought a condo. Ordered books on tape. Prepared for my new life. Then, day by day, my vision returned. I never forget that year, with every book I read, every bird I see, I really LOOK.

By definition legally blind is vision worse than 20/200 and not correctable. Also a visual field of less than 20’ diameter is considered legally blind.

Now comes blind, no comparison, indescribable really---a total NOTHINGNESS. It is NOT like closing your eyes. How can I describe seeing nothing? I looked in the mirror one morning and where my face should be was nothing, absence of all that is. The most frightening experience of my life was nothing at all.

I rushed back to bed, covered myself completely, and hoped this too would pass. It did. I looked in the mirror again with great trepidation, but all was restored. MS wanted to remind me who was in charge. How do you go on from there? How do you bravely look in the mirror? You just do. You must remind MS who is in charge and that being and fearing are neither absolutes, nor synonyms. I had always wondered what being blind was like; and a self-fulfilling prophetic desire to know has been resolved. After reading the thoughts of many who are born blind, I realize only someone who once could see well, could describe blindness---and you see how well I can.

Think of all Helen Keller, Stevie Wonder, and all the ordinary (an oxymoron indeed) blind people of the world have accomplished. My respect for all of them can not be greater.

"I am only one, but still I am one. I cannot do everything, but
still I can do something; and because I cannot do everything, I will not refuse to do something that I can do." Helen Keller

"What you lose in blindness is the space around you, the place where you are, and without that you might not exist. You could be nowhere at all." Barbara Kingsolver

"Everything that we see is a shadow cast by that which we do not see." Martin Luther King, Jr.

Monday, December 17, 2007

Black and White are Equal


The magazine, The Independent (UK) recently had an article about the famine and problems in Africa--on the cover was Kate Moss. Maybe it is my 50 year old, white, memories from the 1960's; maybe it is my first black teacher in the Indiana school I attended who motivated me to carry the racial tensions and history of his achievement with me forever; or maybe my mother just taught me to give a damn, but I find this offensive.

"Why has it become OK for people to black up? People feel free to play with this stuff because they are operating in an environment where the criticism of being politically correct allows you to do what you want," says academic Paul Gilroy. "The threat of being labelled politically correct creates an environment where we are scared to voice our objections." Given the context, the Kate Moss picture is "empty nihilism," he says. "Blacking up has become acceptable in the same way that pole dancing is now sold to women as an empowering thing to do. Both assume that the thing they are poking fun at no longer exists - IE discrimination, racism and sexism. But of course they are wrong. If blacking up existed in a society where racism was not an issue, then it would not be such a problem. But then it would also lose its power to shock. After all, what is so shocking about a white person being made to look black if black and white are equal?"

This brings to mind the ugliness a the Oct. Oregon State University football game where some students painted their faces black and wore "Afro" wigs, in the name of team unity. Larry Roper, the OSU vice provost for student affairs said, " I didn't connect it to the historical context of black face..."

The nooses in the Jena 6 incident were just a joke to many white residents there. Feigning ignorance is no longer acceptable.

I think it is time we made African American History a required course by middle school, since it obviously is not being taught in homes. Do history books teach the fight women took on in the 1970's? How can our university students and graduates be so ignorant?

Sunday, December 16, 2007

No Bull



It WOULD have been a wonderful life if James Stewart had gotten residuals.

So what IS Paris Hilton doing for multiple sclerosis?

Why do we say “tuna fish,” but not “chicken bird?”

Why are Sailors in the Navy never on sail boats?

When a dog barks in the forest does it make a sound?

If olive oil comes from olives, where does baby oil come from?

Why don’t NBA players eat at Dunkin’ Donuts instead of cops?

What stupid crook robs a Dunkin’ Donuts? Dustin Hoffman hit him with a tip mug until the crook took off. Elmwood Park, NJ 12/12/07

Truth really is stranger than a lot of fiction
.

Saturday, December 15, 2007

Caroline Kennedy Turned Fifty

I always felt a connection with Caroline Kennedy, same age, Irish, she had a pony-I wanted a pony. Neil Diamond recently admitted his song,"Sweet Caroline." was inspired by little Caroline and the turbulent times she experienced her childhood in. Now she is on the cover of AARP Magazine. Here is the article by one of my fave writers, Tom Oliphant:

Caroline Kennedy
Scion of Public Service
"Ever since I was a little girl," says the soft-spoken woman in the silver dress, "people have told me that my father changed their lives, or that President Kennedy's inaugural challenge—'Ask not what your country can do for you; ask what you can do for your country'—inspired a generation in the 1960s that transformed our nation with courage. To me that is one of his greatest legacies. Now, it is up to us to redefine that commitment for our time."
That "little girl" turned 50 in November. And nobody has done more to honor President Kennedy's call to action than she has. Caroline Kennedy today is a busy wife, mom, bestselling author, and vice chair of New York City's reform-minded Fund for Public Schools. Her quiet demeanor brightened by flashes of the sardonic Kennedy wit, she smiles at the inevitable question of how the milestone of AARP eligibility feels.
"It's not that old, is it?" she says. "I guess I make other people feel old, but I got really excited about my birthday. I feel like I'm really happy, fortunate to have my family and the things I'm involved in, even without the people not here who were here once. Knowing the impact my parents had, and have, has always given me a continuing sense of their presence, as well as an understanding of the power every individual has to make a difference."
In the generation since she came of age with a Harvard College diploma and a Columbia University law degree, Kennedy has used her personal power to help those less fortunate. She has raised tens of millions of dollars for the New York City public schools—a cause she adopted after being shocked into greater activism by the horror of September 11—and works to design the special programs that will put that money to its best use. Says the fund's CEO, Stephanie Dua: "What Caroline has done is help us figure out how to function as a catalyst for change, how to leverage every dollar we provide. That requires being in the schools, where the action is, all the time, which she is. The impact is huge."
It is a hallmark Caroline Kennedy trait: by zealously guarding her time and her privacy, she can focus her energy—whether it's using her quiet leadership style to help build consensus each year around the winner of the John F. Kennedy Presidential Library and Museum's signature Profile in Courage Award, working on the bipartisan Commission on Presidential Debates, actively supporting the NAACP's history-shaping Legal Defense and Education Fund, or serving as the honorary chair of New York City's American Ballet Theatre.
Among her professional endeavors, though, her first love is literature: her latest project is a collection of Christmas-themed poetry that she and her brother John loved (A Family Christmas, Hyperion). And though her three children attend private schools, her passions are the public schools and literacy. "Having grown up in New York, and having school-age children, it was shocking to realize how starved our students and schools have been for so long," she says.
"It means a great deal for the principals and teachers and families to feel that the city cares about their children. And things have gotten better."
So what does the future hold for the woman the nation has watched grow from adorable youngster to accomplished young woman to AARP-eligible activist? Kennedy isn't exactly sure, but she's excited about the possibilities. "I'm extremely busy, but of late I've had the sense that something was going on. It's not unease, but more a feeling that there are a lot of mountains still out there, that there's something else." She adds with a hopeful smile, "I can't wait to figure out what it is." —Tom Oliphant

Friday, December 14, 2007

Jodie Foster, Yep, She's Gay

Nothing any person with gaydar hasn't known, like, forever; so why do we care? As long as there is gay bashing, as long as parents shun their gay children, as long as gay people are told they will rot in hell, as long as gay jokes are funny, as long as suicides among gay children continues, as long as gay Americans are too imperfect to marry, as long as gay people in other countries are murdered as the sun sets and rises, as long as being gay is feared, ridiculed, considered a mental illness and an error; we care. We all should care.

Sick of the Candidates

OK, enough. I am now officially sick of the upcoming election for president. The mudslinging has begun amongst each party. I am sick of Bush. I am sick of Cheney. Sick of hearing how the "war" in Iraq is bad. Is good. We are winning. We are losing. I am sick of seeing the bombs on buses, cars, trains and plains. I m sick, SICK of hearing what PUNDITS and reporters THINK about the candidates--I don't know you and I don't give a rats ass what YOU think. I m sick of people screwing up Obama's name. I don't care if his wife is blacker than him (HOWEVER you mean it), I don't care if Thompson's wife is 15 or 85. I don't care if Huckabee is a preacher, butcher, or candle stick maker. Don't care is Romney is Mormon or Jewish or Atheist. I could care less if Edwards wife has cancer or MS or if his hair cut cost $5 or $500. I am sick of hearing about their sexual activities, their health care plans for a plan, ANY of their PLANS FOR A PLAN that they PLAN to do. And hell no, I don't care what they wanted to do in kindergarten or who donated to their "war chest." I am sick of the jokes from The Daily Show, Leno (reruns), Colbert Report, and the Vegas stand-ups. I'm sick of SPAM telling me to be a Socialist, Communist, terrorist, Canadian, Green Party, Independent, Democrat, Republican, sex buddy. I am sick to see our current pres-with-a-dent sending out Christmas cards with a "You are the Lord..." quote in it. (seperation of church and state except at Christmas when everyone must be a Christian?) I want to vomit that the Republicans held a "Spanish speaking," event, suddenly, they are the party of Hispanics (and WHAT have you done for them lately?) I am sick of vigilantes, nooses, gay jokes, women being killed by jilted boyfriends or arrogant husbands, the NRA still standing by "guns don't kill," while colleges and high schools are no longer safe places to send our kids. I am sick of the candidates avoiding our real issues. And I am sick that our presidency is a THING to be bought. I am sick that we have no leaders to vote for. What is so hard for them to understand? We all want the same things: a home, a job, opportunities equal to those of very other citizen, safety, clean water, fresh food, good health, good schools, life and death with dignity, and the pride to say to the world, "I am an American."

Please, PLEASE, don't let an alien from another planet land in the U.S.A and say, "Take me to your leader." Not now. Not now.

Thursday, December 13, 2007

The GREAT DEBATERS, Denzel Directs

Oprah and Denzel. Need I say more? Finally a movie about the only subject in school that I connected with: public speaking and original oratory. A lost honorable expenditure of the human spirit. Yet, what else has ever moved us more? More debating and less warring would save lives and futures. Thank you, Oprah! Thank you, Denzel, for bringing this inspirational. story to the big screen. Harpo Studios is producing this story of racial tension in the Jim Crow South and an all black school debate team taking on Harvard (it was actually USC, but this IS a movie) in the 1930's.

The Myth of Memory Loss

"Where did I put my keys?" "What was her name?" "What day is this?" "I'm just too damn old!"

All the above quotes are from my 100 (soon to be 101) year old great-aunt. All spoken when she was in her early fifties. When you quiz her memory now, it is over-loaded but aggravatingly sharp. (Especially when she does math in her head, faster than her 50 year younger niece.)

My hypothesis is that memories (everything a person has every seen, heard, smelled or felt on their largest organ--skin) are engraved into their brains forever. Once we head past the age of 25, our cognitive (conscientious, intellectual activity, like thinking and reasoning) function begins to deteriorate, which first becomes concrete and noticeable as, "Why did I come into this room again?" or "What did my girlfriend say she wanted for Christmas?" or the popular-"Hey, isn't this the video I rented a couple weeks ago?" i.e. memory.

Read a Harry Potter book and listen to your 8 year old quickly repeat the name of every character. Luckily, if you are under forty, chances are that your memory will be attainable for most if not all of your life. Dementia, Alzheimer's (recently suspected to be a Third Type of Diabetes according to a study out of Northwestern University in Illinois) will be forgotten history as cures seem within our reach. But a healthy brain's memory loss does not need to accompany us as we age.

We will soon have proof that memories and the parts of the brain that capture, store, and retrieve them; can all be replenished by our bodies, with and without pharmaceuticals intervention. When I was first diagnosed with multiple sclerosis (MS), my neurologist told me that dead brain cells could not be replaced. I confidently, (God knows why?) told him that I disagreed. It simply made no logical sense to me since so many of our body's other cells die and make room for new ones; and because we then knew so little about the workings of the human brain (or any other brains for that matter).

Finally, people much smarter than I, have proven that the brain can in fact manufacture new cells. So, especially since I have MS and my brain is already shrunken more than a normal 50 year old, my lifelong goal is to build new cells and increase my brain matter.

How will I do this? I am learning new languages, Spanish, German; learning to spell better; using my left hand to do things I have spent 50 years using my dominate right hand to do. During an exacerbation that left my right fingers unusable in 1996, I began writing and keying with just my left fingers. It was amazing how quickly (just weeks) my brain was able to compensate.

Playing games online with seemingly young, fast players. Reading books again, no matter how hard they are to hold, no matter if the once familiar words look alien me. Blogging, even if I am five steps or ten years , or three degrees behind all the other bloggers. In other words: making my brain do new things, like it had to do when I was 2.

"With a reasonable amount of effort, you can improve your memory 30 to 40 percent," says neurologist Barry Gordon of Johns Hopkins. Doing the NY Times crossword puzzle every day is not enough. That builds one good connection, probably new cells and synapses, but the activities we chose must be different, ever changing, increasingly challenging and should include as much of our bodies as possible,e.g, yoga, singing, golf, computer programming, making new friends.

That is my hypothesis, memory loss as a prerequisite of aging is a myth, Our memories are within us for the taking. The "decade of the brain" 1990-2000, may have ended; but, we live on and now it is up to each of us to declare each day, THE DAY OF THE BRAIN.

Wednesday, December 12, 2007

TV NEWS SHOWING ACCIDENT VICTIMS

If I have to see another injured person taken from a car crash, on my TV, I'll, I'll, be really mad.

Camera men/women, have you no decency? TV news manager, where is your compassion? I, along with many others, see this while hearing, "Names of the victims will not be released until family members have been notified." Oh swell, friends and family members won't recognize their loved one's car, clothes, shoes; or knowing that their loved one is out on the road will not become frantic with worry.

The all powerful ratings rears its ugly head and roars, "WHO CARES!?"

Decent people care and I boycott your news channel. Lead with the photo and I assure you I will not watch your show. Hear that, advertisers? If this irks you too--write or email the channel and let them know how you feel. (Then watch another time and contact their advertisers.)

MY GUARDIAN ANGEL

I've been thinking a lot about guardian angels lately. I know 'tis the season, but 'tis more than that. According to a recent study done at the University of California (and I've noticed this all my life) there is a spike in death rates during the holiday season. Several of my friends and family have died around this time. I guess, mostly, I wonder why I am still here. I wasn't planned AT ALL. I was hit by a pick-up truck during a slow summer day, in a small city, in front of an attended gas station, four high school jocks staring my direction while sitting atop a Salvation Army dumpster, crossing the large two-lane street, clear of trees, I looked to my right--all clear as far as I could see ( and in Indiana, that is a long way); I looked to my left--all clear and off I went on my red Schwinn bike. I never made it four feet before the truck hit me.

I awoke on the curb, saw the truck stopping in next block, heard the jocks shouting,"Hey! You hit a kid!" The gas attendant called the police. I never saw the truck. The driver never saw me.. The jocks didn't see the actual collision. The gas attendant didn't see it either. A moment in time meant to happen. My head it the curb so hard a piece came of as big as bread box. Blood was gushing out of my head, right where my largest Multiple Sclerosis plaque would be found by MRI(Magnetic Resonance Imaging, forty years later); I never saw any blood at the time since it was gushing from the back. The hospital was less than a block away and the police arrived within minutes. When they cut my jacket off, I asked for the dime in the pocket because my mom told me to always keep a dime with me to make a call in an emergency. I still held that dime through the surgery and all the way home that long day.

Over the years I have had "close calls," unintentionally running red lights in the midst of traffic, cars stopping inches of hitting me on my scooter (both drivers were talking on cell phones), my ovarian cancer that had been growing many years, yet never spread; and one day so mystical...I can only all it the work of a higher power.

The morning was usual, head out alone at 5AM on my scooter to grab a coffee before starting work from my apt. where I telecommuted for several years, stop to drop off mail at a small slot between a coffee shop and business mail box slots in the the retail side of my apt. building (no shops were open that early, I felt it was mine all mine!); when suddenly my glove got stuck on the "GO" lever of my hand controls as I reached with my other hand to drop off the mail. Ahead of me was an open solid steel slot, directly at my neck length, and I shot off 5mph toward it. My life didn't flash before my eyes, but I knew it was the end of me.

Then something happened that I really can not explain with words. It was as if a hand came in front of me and I came to a stop past the protruding steel. For a split second I swore I saw a man. After loosening my glove from the control, catching my breath, I slowly backed up, pushing with all my force, the steel plate aside so that I could pass.

I stopped in the dead quiet mall for a moment, looked around, then said aloud, "Thank you."

Talk about in-your-face. I couldn't stop thinking about it as I continued across the street to get my coffee. As I waited for my usual barista to make my mocha, I told her what had just happened and how could it happen and so on. While she just shook her head and made my drink, I heard the deep, calm voice of a man walking behind me say, "Sometimes the reason is not important. Sometimes saying thank-you is enough."

I turned my head to the left to catch just a glimpse of him, then quickly to the right (I was seated in my scooter) as he headed out the front door. "There you go," said the barista as she pushed my mocha towards me. "Betty! Did you see that man?" (Betty and I knew everyone in the 'hood during those hours) "What man?" "He was just behind me!" "Oh, yes, I've never seen him before."

Quickly I exited the direction he had, looking up and down the main drag, Broadway, I saw absolutely no one out. No buses, no moving cars, no sounds. Neither Betty or I could recall anything other than he had shoulder length, gray, wavy hair. We think he was Caucasian, about 5'11"...I would look for him again and again, but never see him.

I believe this was my guardian angel. Not only did he save my life again, but he came near to comfort me. I know the answer to "why me" is something only I can answer; but when my life seems so blessed and I become obsessed with needing to do more, be more, find why I should be wanted to live while so many other innocent and wonderful people die---the words of that stranger comfort me and I just say, "Thank you."

And yesterday, I WALKED. My nurse aide witnessed it. I moved so normal and strong...I still can't believe it. A short distance, but it filled me with such hope. Dr. SWNBN will not declare that I will simply dwindle from here. I refuse to dwindle.

Thank you.

Tuesday, December 11, 2007

Starbucks My Guilty Pleasure


My guilty pleasure: Starbucks coffees and pastries and service. Overpriced? Oh yeah. Too many calories? Most certainly. But the friends I’ve made there, the strangers I’ve enjoyed talking with, the memories given to me? Priceless. Early morning, in the dark, smell of coffee, sound of smooth jazz…ahhh.

BROTHERS AND SISTERS - REAL LIFE

Family, brothers and sisters, not like it used to be. Do people hold family reunions anymore, where at least 100 people show up? I remember going to one as a child. So many strangers and my mother paraded me around as if I wee her trophy child. Now, at 50, I wish I could go to a family reunion like that. Oh, I have lots of family photos dating back to civil war; handwritten letters from family hopping trains rushing for Calif. and gold. And I have a wonderful family book of stories going back to when we had a castle in Switzerland. Now… exploring family history is for people retired, who decide to try and piece heir lives together before they die.

But this post will focus on a more current family issue: divorce. Divorce was once very rare, today it seems to be more the rule than exception.

My sperm donor left my mother with a newborn (me) and 2 boys, ages 7 & 8.

My oldest brother (I’ll call him Mark) married when he was about 20. He had a son (I’ll call him Jeff). Mark was always the favored child, favored particularly by my 100 year old great aunt Vi. She owned the large two stories, three apartments, home that we all grew up in. Aunt Vi would buy us food, toys, clothes, whatever she thought we needed. Aunt Vi was the youngest sister of my mother’s mother. My grandmother died when my mom was only 15, Aunt Vi was 21 and took my mother under her wing.

Aunt Vi’s way of showing love was to feed. She fed Mark until he became very large. Our mother was stressed over working, and being dumped by her husband; she was not much of a cook. Aunt Vi lived with her longtime companion and companion’s very religious mother. All loved to cook and bake and there was always good eats upstairs. Middle brother (I’ll call him Bobby) was ignored and so weight was never a problem for him. I, being the cute little girl, was spoiled into foodafacation as well.

After Mark married, he ballooned into a huge size. Funny, all through my childhood he hassled me about my being too fat—self hatred, obvious to me even then and a part of me felt sorry for him. When he turned 18 and had to find a lover, he lost weight; gained it back after being married a year. Bobby was an athlete in school, had no problem getting girls. Mark and Bobby got along great. I never remember them fighting.

One night my mother got a frantic, sobbing call from Mark’s wife. He had left. Mom and I jumped in the car and drove past all his friend’s homes. Mom finally found him and he said he was not going back. He said he didn’t want to be married.

And so he divorced his young wife, wanted nothing to do with his son (who looked JUST like him and Aunt Vi began Jeff’s spoiling early, making him fat and every time my brother looked at him, yep, self-hate. I had many arguments with aunt over this, but she was and remains in denial.

Meanwhile, the rich lady who owned the large house next door to Aunt Vi’s felt sorry for my mom, so she sold her house with some very expensive furniture, THREE car garage, EXTRA lot, to my mom for a small amount.

Vietnam rolled on, the lottery draft televised on TV, Mark had an exemption because he was born with club feet, Bobby’s number was called. He joined the Marines. His days of having one girl slip out the back through his convenient bedroom door, while another one (who would become his wife when the war ended) came in the front door were over.

Bobby’s wife was thin and blonde. Mark once lamented, “Why can’t I find a woman like that?” Aunt Vi and my mom kept up visits and phone calls to Mark’s ex-wife and their darling Jeff. Mark avoided both, but aunt and mom wouldn’t let up. Aunt Vi would pick up Jeff and guilt Mark into coming over. She made that part easy by renting one of her apts. to Mark, this allowed her to feed him, clean his apt. and do all his laundry. My hatred for Mark grew as the older he and our aunt got. Mark still undermined me any chance he got.

Well, my best friend, (I’ll call her Gudrun-German name) was thin, blond, and ready to leave her husband. She had gotten pregnant at 17 and though they tried to make it work—it didn’t. She felt in danger and wanted out right away. I was living in the upstairs apt. of my mom’s house and ready to move away. There was nothing for me in Indiana and I had found the love of my life (we are still together 29 years later) in Michigan; so, I offered my apt. to Gudrun and her thin, blond, son. (I’ll call him Tim) She happily accepted.

That was the last I heard from her for several years. She did not show up to help me pack. She did not show up or call to say good-bye. My mom would tell me that Gudrun moved in with her son and husband. That lasted less than a year. My brother, Mark, fell for Gudrun and moved in with her and Tim. There went one of the obtuse defenses aunt gave for Mark’s treatment of Jeff---“He is just too young to be a good father.”

Of course, aunt and mom were furious over the development. Suddenly, Mark was a wonderful, loving, father to Tim. Meanwhile Jeff and his mother were living in low-income projects. Now, Mark probably thought he had really pulled a fast one. His dream finally come true. (Here is where I can NOT contain my laughter) Little Tim asked if he could have a play date with a friend he LOVED from daycare. “Sure,” said Gurun.

The friend was JEFF! Jeff and Tim, 2 years apart were in the same daycare! Well, the boys became “brothers,” with Tim calling my brother-Dad and Jeff calling him-Mark. Remains so to this day.

Strangely, Gudrun, Mark, and Tim, moved to another small town in Indiana.
Then, after Mark got his college degree and a good job offer—off to New York they went. Mark advanced in the company. They had a new house built on a lake. Eventually, Mark rode the internet wave to Silicon Valley. His wife got a job selling office supplies to all the start-ups. Their son, Tim, got a college education. Life was good.

Meanwhile, Jeff’s mother remarried (several times), Jeff, so says Aunt Vi, had to have a bedroom in a damp basement, was beaten by one of the husbands and basically got into some trouble in school. By now I was living in Seattle, WA, and the only news I got about any of them was from my mom and Aunt Vi. Apparently, with the support of Tim wanting to have his “brother” around and with Jeff’s mom’s appeals to Aunt Vi, Jeff lived with his father in NY, where he graduated from high school. And again briefly, in Silicon Valley. All such “visits” seemed to end on a sour note, but I never was told what happened. By now I had MS, ovarian cancer, and perhaps they didn’t want to bother me.

Somewhere around 2000, my brother retired. He and Gudrun bought an RV and explored the USA, ending up outside Vegas, where my brother could spend his days playing cards and eating at the buffets. Out of the blue I get a card from Gudrun. 25 years, not a word. She gives me her email address. We start emailing. This was right before they headed for Vegas. Low and Behold, her son, Tim, has moved to Seattle where his girlfriend is going to attend the University of Washington. What a coincidence. The first time Gudrun SPOKE to me was when Seattle had an earthquake and “Have you heard from Tim?”

Then I get a call from my mom, “Tim has invited Jeff to stay with him in Seattle! Can you find a job for him?” I met Jeff and Tim after 26 years when they stepped around my cubicle wall at my city job---it was like time travel. They were little boys then I blinked and they were men. It was surreal. Tim and his girl were dressed very preppie and Jeff had on shorts with a tattoo running almost the length of his leg. (And I had spoken to my boss about getting a job for him.)

Long story short: Jeff abused Tim’s generosity, not looking for a job, playing video games all day, Tim and his girl broke up. Jeff got a good job through a Temp agency, he found a nice apt. where he could walk to work (Aunt Me gave him the deposit, later to discover his father had also); he got a personal trainer and lost about 100lbs. ---he looked great. I held a 30th birthday for him, Tim came, and it was so much fun. I felt like I was not so alone anymore. I always felt close to Tim. Having him near was such a joy, plus I was going to have a relationship with my nephew. I cursed that day when I found out my camera had no film in it! I had a feeling…that we would never all be together again.

The following day I got a call from Tim—did I know where Jeff was? He never showed up at work. Then the calls started from Aunt Vi, where is Jeff!? He’s been kidnapped! “I call his phone and he doesn’t answer, Jeff doesn’t know where he is either.” I thought this was unusual behavior. I would come to find out that THIS was the real Jeff, the one I’d treated to breakfasts out, given my almost new computer to, played chess with, had over for all the holidays, THAT was the Jeff he couldn’t be.

I called his cell phone (that had caller ID): “Hello.”
“Jeff, you wanna meet for breakfast tomorrow?”
“Uh, nah.”
“OK, maybe next week. Where are you?”
“Yeah. Vegas.” Bye. Bye.
End of call. I called Aunt Vi, Jeff is fine. I just spoke to him, so you can stop worrying.”
“WAAAAAAAAAA?? WHERE IS HE?”
“He is 30 yeas old Aunt Vi, he is in Vegas, let it go.” (Didn’t have the heart to tell her that he was avoiding her calls. I did tell Mom, though, and she agreed.)

Then I get call from Mom, VISA contacted Aunt Vi because her card suddenly had a $10,000.00 charge on it. Aunt Vi is now hysterical and CERTAIN someone has a gun to Jeff’s head. (We NOW discover aunt has added Jeff to her VISA)
I call his cell, ave to leave a message, “You little #$%^&! Aunt Vi got a $10,000.00 charge on her VISA. Call her and call Tim. Do you have any idea what you’ve thrown away?”
Next call I get from Mom, the Visa bill is now up to $25,000.00 and rising. Aunt refuses to cancel card, certain his life is in danger.

My brother finally is persuaded by aunt to find Jeff, he finds charges for penthouse suites, prostitutes, and all the fun money can buy in Vegas. After $30,000.00 plus, aunt cancels the card. Bill collectors will hound her for years. My mom begs me to keep him here. Jeff returns to Seattle. Tim refuses to let him stay with him unless he gets a job. I offer to pay a months rent, but ONLY if he apologizes to aunt, pays her back, and becomes a man.

He returns to Indiana. Moves in with a friend. Never pays aunt back one dime. She holds him innocent because she is sure he is sick. The entire Indiana family is furious with him. Aunt insists they treat him kindly. It is big tension in Indiana. My aunt and mom live together in a low rent complex. Jeff is used to spending nights with the, having 90 year old aunt do his laundry, he stops by for her breakfasts and to shower. I hear he stops by to PLAY POKER FOR MONEY with her and I know she can barely see the cards.

His father? He has washed his hands of the whole mess. Tim? He moved back to Calif., after a few years he married a girl he had known from high school. We IM occasionally, but never speak of Jeff. I was furious with lack of assistance given to aunt and mom by Mark and when I informed Gudrun that her husband’s mom was diagnosed with Alzheimer’s, that Aunt Vi fell and his brother and our cousin had to handle the whole situation( along with my long distance involvement trying to convince aunt to move to an asst. living home, advising the cousin who has picked up the slack left by brother, Bobby, contacting relatives I hadn’t spoken to in 40 years) she nonchalantly emails,” That must be hard for them.” That is the LAST contact I expect from her or Mark.

So…how could we have saved Jeff? His father was unable to right his wrong, no incentive. Jeff was included in all the family get-togethers, though other than that he did not visit his cousins (my brother Bobby’s 5 kids). He had a half sister, half brother, and a few step-siblings; but they too did not come from happy families. He had uncles on his mothers side who were always there for him, gave him jobs, but other than that he didn’t speak to me about them much.

How could we have stopped him from becoming his father? We couldn’t stop Aunt Vi. She trumped all our efforts.

My brother Bobby? He never wanted kids, at least not as soon as his wife did. After the 5th child, he and his wife divorced. Nice, rich, aunt Amy, who was always happy to baby-sit on nights when Bobby’s wife (her SISTER-IN-LAW) had to work, and buy the kids gifts, ended up divorcing her husband, marrying my brother, Bobby, after an ugly divorce. Moving into a newly built, large house, not too far from our mom.

The 5 kids? They stopped answering my letters years ago. The oldest daughter once lived in SEATTLE (unbeknownst to me until she was ready to move back to Indiana) TWO BLOCKS fro me! We did get to meet for coffee twice. She asked me to forgive her for not thanking me for her graduation gift. I liked her so much. She sent me an email photo of her baby, Grace, she had, but that was last I’ve heard from her. My mom says she had another baby. I was so close to Bobby’s first wife, but all my cards and letters to her go unanswered. This year I am ending very few cards.
They do not visit their aunt or grandmother. Divorce often throws the baby out with the bath water. Those children have nice aunts and uncles and grandparents who live in nice houses in nice neighborhoods, on their mother’s side of the family. I am lost to them. They do not need a sick aunt 2500 miles away. They do not need a sick grandmother in a little apt., or a 100 year old blind and deaf great-great aunt.

I have been asked a question by a reader who is in a somewhat similar situation, a better situation then mine. My answer may sound simple, but it has worked before and if you are not too late (and if you ARE too late---don’t beat yourself up over it, even Oprah can’t save everyone) it is all about setting a good example. Try to be a teacher of empathy. Tell stories, the importance of family, unconditional love, caring for family. Show how interesting people can be. Tell stories of when YOU were in your twenties and when grandma was. Try to find something grandma and grandson have in common. Enlist his help in gift buying for your mom or singing a song for her, a skit, a drawing, whatever he is interested in. It is very hard not to like people who like us. Maybe you need help that only a strong man in his twenties can help with. Any good stories about your brother in is twenties?

One time my aunt firmly said to me, “Don’t EVER grow up like your mother.” I answered, “I won’t.” I took the best of my mother and left the rest aside. I knew Aunt Vi loved my mom; we never blamed her for how he was. With my nephew, Jeff, I tried to explain why his father did certain things that were hurtful; without venting my personal baggage with my brother. Sadly, sometimes we are just too late or never had the chance; it is then that you have to go into acceptance mode.

Monday, December 10, 2007

Moral Compass Fears The Golden Compass

Religious groups seem to be up in arms over the new movie, "The Golden Compass," starring Nicole Kidman. They are concerned it will cause children to read the book ala Harry Potter, and want to become Atheists. Hasn't been this much drama over a movie since Mel Gibson whipped up people over "The Passion of Christ." Let's see...when was the last time a movie changed your religious views? Did John Travolta's "Battlefield Earth," make sign up for Scientology? Did the widely read book and box office smash, "The Da Vinci Code," make anyone write in their Bible,"and Jesus married Mary?" Did 1994's "The Priest" make people think priests might be horny? Oh, wait, reality might have made people think that. Bad example. How about Monty Python's "Life of Brian;" did people decide after viewing it that all religion is a crock?

Maybe films that depict any religious beliefs should start with a disclaimer as "Dogma" did: "...before you think about hurting someone over this trifle of a film, remember: even God has a sense of humor. Just look at the Platypus."

People! Whatever your religious views, in the U.S.A we still allow people to believe what they wish. We are supposed to be better than countries that use censorship to control thought. We are supposed to be able to view what art we want, read what book we want, dance, sing, create as we please---without being under the auspices of any group of people.

If you are strong with your belief system what are you afraid of? How dare anyone consider another human being so mindless, even children, that they want the power to ban our opportunities to think? The influence of religion into our government is bad enough. You have put your two cents in already, thanks to a minister's request in 1861, in 1864 "In God We Trust," was minted on a 2-cent coin. After fighting over that for years, in 1955, God was mandatory on all money. I sure don't recall God or Jesus ever concerning themselves with money. So all the filthy rich, diamond covered doghouse owning preachers and the pockets deeper than Bill Gates Catholic church, just chill. Worry about your own house, not the movie house.

Sunday, December 9, 2007

HEALTH CARE FOR ALL, IF NOT NOW,WHEN?


What`s wrong with wanting more?If you can fly - then soar!

Father, Can You Hear Me? Can You See Me?

It is late, dark. My father, Francis Eugene, died in the early 1980's at the age of 56. Since he left his wife (my mother, who never remarried) with a newborn baby (me) and two boys, 7 and 8; to go live with and eventually marry his mistress (who he already had a 2 year old daughter with), he and I never knew each other. I saw him once after the divorce, at Christmas he brought a ten cent plastic pinball toy for me. I must have been 3 and immediately tossed it out. My mother never said a bad word about him, ever. He never visited and only when I was out of high school did I learn from my good friend that she lived a block from him and his family. I passed his street on my way to school and never knew it. My friend's dad and my dad were drinking buddies, among other unsavory activities. HER dad had an affair, leaving her mother, her, and 3 other children for a much younger woman. He too, strangely, died at the age of 56.

So, when my mom called me at my job in Seattle, Washington, to tell me that my father had died---so what? It was a brief call. He had been gone to me, well, forever.

Now that I have multiple sclerosis, it seems he left me that "gift" as well. I can trace my maternal family history, actual life stories, to civil war years---nothing neurological. Oh, sure, maybe because I feel betrayed, deserted, and devalued, by him; maybe just wishful thinking...and yet.

His brother, Sonny, was adorable and kind to me. He once drove ME in his new Corvette, down a dusty Indiana road when I was about 4. The story about what happened to Sonny is sketchy. He died some years ago, my mother found out in her doctor's office...an old friend recognized her name and knew Sonny. Apparently, Sonny was "not right in the head." Hmmm

Loved Yentl with Streisand...sometimes in the dark, when I am all alone...I wonder if he ever thought of me. I wonder if he gened me with MS. Thanks, papa, I always wished for you all that you gave me.

Saturday, December 8, 2007

Fish for Multiple Sclerosis? FDA to Regulate










What, if any, vitamin/mineral/etc., supplements do you take for MS?

I started taking 400 IU Vitamin E. after reading in 1990 that most doctors at some convention in Geneva took it. I also read it helped eyes. I was legally blind at the time and started daily dose. My eyes improved and so I’ve continued to take for 17 years. But I wonder if it is doing anything good for me. Reports said, “E…antioxidant…good” then years later, “E… bad for liver.”

That seems to be the route vitamins take. One research report says good idea to take it, another says opposite. Bottom line: nobody knows for sure.

I take a multi-vitamin, no iron. I take an Omega Fish Oil capsule because I can no longer cook the fresh and wonderful NW salmon, easily purchased in building I live in. I started B-complex vitamin in 2003, when my walking was getting worse. It would send little “shocks” up my legs. Told my doctors, they had no clue why that happened or what it was. What I know is this: after my hysterectomy the surgeon told me I would experience “electric shocks” as the nerves healed. Was similar feeling, sooo….you do the math.

The B stopped giving me shocks after a year or so and my walking didn’t get worse or better. I’ll always wonder what was happening. Now I take it on/off, as they say you are just buying expensive urine. (Goes right through ya.) I may start taking calcium, now that I’m 50 and can’t stand much.

I also consume 2 daily Starbucks mocha's (no whip) daily. (Caffeine is good-ups the dopamine.) Need to get more sun; but, on both notes this IS Seattle---lots java, little sun.

Water is my friend. I consider it a supplement, helps me to emphasize the importance of drinking lots.

In 2007 the Food and Drug Administration decided to regulate dietary supplements. By 2008 manufacturers will have to test for purity, identity (that they are what they claim) and strength. They also will have to report any adverse events to the FDA.

If we took M&Ms and got better, we would swear by them, such is MS.
Hopefully my normal diet gives me all the vitamins I need. Sometime I feel foolish paying for silly supplements.

 
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