Tuesday, February 24, 2009

MS Won't Kill You, But Watch Out For COMPLICATIONS

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

6 comments:

Webster said...

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

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Diane J Standiford said...

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

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Taxingwoman said...

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

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Diane J Standiford said...

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

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hobbz said...

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

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Patrick @ Caregivingly Yours said...

After being diagnosed with MS in 1990, I read all the books I could find about MS. What a difference from the vast access to info that people have today. Not much available, I still have two books purchased at the University Bookstore. (And Seattle has MANY bookstores, ironic that Amazon.com started here and put several smaller, wonderful, bookstores out of business.)

The chapter written by a MS Dr. stayed in my mind: After falls, people got much worse (never fall, Diane) and one of the "...complications from..." that kills is an infection. (Don't get an infection, Diane and if you do---take care of it pronto.)

Well, I finally fell in 2004 (or was it '05?) and it has been downhill ever since. So, when I was told after 5 days and over $50,000 of testing that I had an unknown "viral" infection...wouldn't you think I would have suffered a relapse or my neurologist would email, call, or show some type of concern? Me too, but, nah.

Guess my next move is to get all my records from the ICU...I wonder how much THAT will cost and it will cost. How wrong is THAT? $50,000+ and counting, the bills are still coming in.

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