Wednesday, November 11, 2009

Huntington's Disease Blogs Searching for Life

http://survivinghuntingtons.blogspot.com/


"Angela F
I found about huntington's being in my family over ten years ago, and am currently watching my mum's progression. I am hoping to use the blog to explore the situation, and explore how her illness and her subsequent behaviour can be handled so that it doesn't destroy me or the other relationships in my family. I know now that I too carry the gene for Huntington's. I am not symptomatic. So this blog will also record my fight against the disease, my hopes and fears, and our hopes to start our own family free from this delibitating illness. I hope that my story will help other people to overcome their struggles, and that it will help me and my family in the future to remember what we are fighting for. &nbsp angela_octopus@yahoo.co.uk "

http://heatherdugdale.angelfire.com/

From Heather Dugdale's Blog:

"My family is looking into Stem Cells in China. They have treated an HD person, with HD. I have been following this Clinic, for 2 years now. They hve tested and made their Stem Cells to work.
Choosing to undergo adult stem cell therapy or deciding the time is right for your child or loved one to receive it is a huge decision. While umbilical cord blood stem cells and autologous bone marrow cells are by no means rare in this world gaining access to them is fraught with challenges. But access isn't a challenge in China. Safety tests for your own bone marrow have long shown infusions to be safe and umbilical cord and cord blood stem cells have been safely received by six thousand patients in China now. That represents well over 20,000 transplantation events and opportunities for safety data to present a problem. It simply hasn't."

Huntington's Disease Info:
http://www.mayoclinic.com/

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