Hot off the press! New research shows that those with fewer relapses in the first 5 years of MS were more likely to have a worse outcome. OK, now, excuse me, but this was told to me (and I read it) the year I was diagnosed--1990! This is OLD NEWS. So, I went to the NMSS web site and sure enough they talk about this great discovery. And, is it me, or can YOU understand this convoluted sentence? "They focused on the relationship between relapses during the first five years of MS, years 5 to 10, and after more than 10 years, and progression. People who had more relapses within the first five years of disease were more likely to reach an EDSS of 6. Relapses during this period had the most impact on early disease progression. However the association between early relapses and progression decreased over time, so that people with early relapses who did not experience significant progression early in the course of their disease (did not require a cane to walk by year 10 or did not transition to secondary-progressive disease) were only slightly more likely to at longer-term follow-up." HUH???
Look, I was told that how well I was doing at 5 years would show how I would end up. If I needed a cane, then I would probably never need a wheelchair, if my eyes were okay, then they always would be and so on. I couldn't WAIT for that 5 year marker! I was doing super! Remitted all my troubles away! Then...I got ovarian cancer on year 5. Bum-mer.
That experience really reminded me that MS was just one health condition my body might have to deal with. I thought if I had MS, I had my disease and that would be that. Ha! Fate---a sinister Jekyll and HIDE! So, anyhoo, all this research was funded by the MS Society. THIS was a good idea? We ALREADY KNEW this. Oh, and I love the last sentences on the NMSS site:
"More research is needed to understand the full effects of relapses on disability progression, and how disease-modifying drugs impact the long-term course of MS." Really? Let's try learning something new next time, eh what?
Posts
Disabled People Gamble Or toot, Toot, oops
-
I was struck by how the writer of this article couldn't get what he wanted
from his headline: "Disabled People Used Access-A-Ride To Get To Casinos."
To me...
18 hours ago
1 comments:
Hot off the press! New research shows that those with fewer relapses in the first 5 years of MS were more likely to have a worse outcome. OK, now, excuse me, but this was told to me (and I read it) the year I was diagnosed--1990! This is OLD NEWS. So, I went to the NMSS web site and sure enough they talk about this great discovery. And, is it me, or can YOU understand this convoluted sentence? "They focused on the relationship between relapses during the first five years of MS, years 5 to 10, and after more than 10 years, and progression. People who had more relapses within the first five years of disease were more likely to reach an EDSS of 6. Relapses during this period had the most impact on early disease progression. However the association between early relapses and progression decreased over time, so that people with early relapses who did not experience significant progression early in the course of their disease (did not require a cane to walk by year 10 or did not transition to secondary-progressive disease) were only slightly more likely to at longer-term follow-up." HUH???
Look, I was told that how well I was doing at 5 years would show how I would end up. If I needed a cane, then I would probably never need a wheelchair, if my eyes were okay, then they always would be and so on. I couldn't WAIT for that 5 year marker! I was doing super! Remitted all my troubles away! Then...I got ovarian cancer on year 5. Bum-mer.
That experience really reminded me that MS was just one health condition my body might have to deal with. I thought if I had MS, I had my disease and that would be that. Ha! Fate---a sinister Jekyll and HIDE! So, anyhoo, all this research was funded by the MS Society. THIS was a good idea? We ALREADY KNEW this. Oh, and I love the last sentences on the NMSS site:
"More research is needed to understand the full effects of relapses on disability progression, and how disease-modifying drugs impact the long-term course of MS." Really? Let's try learning something new next time, eh what?
Post a Comment