Tuesday, December 4, 2012

Importance of Finding Doctor/Patient Chemistry

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

11 comments:

Karen said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
Muffie said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
Harkoo said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
tracy.rose@healthline.com said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
Webster said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

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Diane J Standiford said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
zoomdoggies said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
Anonymous said...
This comment has been removed by a blog administrator.
Christie @ the Lesion Journals said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
imascatterbrain said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

Stumble Upon Toolbar
Diane J Standiford said...

In 1990, after a swift pivot during a pick up basketball game, my knee starting giving out on me a tad. I went to my M.D. and within 15 minutes he said, "You have MS." (VERY unprofessional, but perfect call to his credit.) I was sent across street to hospital just blocks from my apt., and met my first neurologist. He did the usual poking and questioning (Now, I know I had a classic case and even I could diagnose it with a 90% accuracy.) Next day I had MRI and in a couple days the disease adventure began in earnest. The knee was collateral damage to every neurologist and physical therapist (PT) since. This first neuro was "...very aggressive..." in his approach to handling MS. I was told I must come in to be hospitalized every time I got a paper cut. He might as well have handed me a gun. I began my search for a different neuro.

My next one was dumped on me after that first one had some kind of mini-nervous breakdown from his divorce. Dr. #2 was a ditzy dope and that's all I'll say. Dr. #3 was terrific, I thought I'd hit the jack pot, and for 14 years I continued to feel that way, though looking back...I think I let quite a number of bad calls slip past---he just made me FEEL so good with his words. He was starting a huge all-encompassing MS Center, "It will be the best in the U.S.!" He basically disappeared after it didn't take off according to his hype. That's all I'll say here about that. Dr. #4 was just a shot at a new hospital that had good TV commercials. (My bad, but I needed one fast after Dr #3 split.) She was awful to me. We never hit it off, she never smiled once, her PT team was a mess. To the plus side, she had done research into one of my most debilitating symptoms,spasticity, and I use her advice to this day.  Dr. #5 (Yes, I am lucky to live in a big city.) was FORTY-FIVE minutes late to our first appt., and that became her M.O. (modus operandi, Method of Operation), she told me while barely looking at me that if I didn't go on Novantrone (a chemo drug, also used for severe MS cases, a 'last case resort' so powerful one can only stay on it a few years at most) I would "...dwindle."  She also thought I should be using a catheter. My caregiver, with me at that first appt., then told my partner I needed to be using a catheter. There was no good reason for any of Dr. #5's thoughtless suggestions. I got rid of her AND that caregiver. Dr.#6 was one I had such high hopes for.

As Dr. #3 once said, "Referrals to doctors is like setting you up on a blind date." So true, and that is how I approach each new doc: Is there any chemistry? Is she/he into me? Do we share core values? (Believe me, it matters.) Well, Dr, #6 was one I had my eye on for many years, as I told him when we first met earlier this year, "You never were promoting drugs in ads, articles, or at seminars." The smile that comment elicited was the only smile I got. He is still my neurologist, but I am definitely not in love, nor feeling the chemistry I'd hoped for.  Time will tell.

Dr. # 7 was a Dr. who Dr. #5 switched me too one day. I had appt. with #5, but was told the day before that #5 had to go out of state. After googling Dr. #7, I discovered she was an M.D. who specialized in MS rehab. I had been shoved off to secondary progress MS Land. Once I made it clear to Dr. #5 that I was not going to just roll over and take her drugs or advice willy nilly, she was done with me. I even mentioned to Dr. #7 that I knew EXACTLY what had happened, she was honest enough to agree. (core values, baby, me likey) As I left, feeling slightly jilted, I saw Dr. "out of state" there in the office. Let's just say I was not unhappy to now be the patient of Dr.#7 .

The next yearly appt, was made and when I arrived Dr. #5 was there to see me! With a rare show (EMPHASIS ON SHOW)  of emotion, she was oh so sad to say she was leaving for another location and would not be seeing me anymore, but Dr. #6 would be taking over if I wanted him. YEA!!!!!!!!!!!!!! Good riddance and lo and behold I had the neuro I'd wanted for years dropped into my lap! Unfortunately, after meeting him, I yearned for Dr. 7 and made the appointment. She didn't disappoint.

Dr. 7 was all I remembered her to be. We have chemistry. We "click." We can start and finish each other's sentences. Yesterday I braved the cold Seattle rain (woe is me--I LOVE such days!) and had a wonderful appt. with Dr. 7---not only does she support my plan of action in every way, she applauds it. She looked me in the eye (core values), listened, respected me, and is on my side. My knee was the first thing she mentioned! She had read all about it already!!

The piece de resistance?! I stood up, using a small grab bar, from my "outdoor" power chair for the FIRST time. Oh, my, I felt so TALL! I felt all 5'6" of me! My knees did not cave in towards each other. I was standing solid with no physical desire to sit. We both stared, half smiling, half gaping, in amazement! I did not expect it, and Dr. 7 did not expect it. We were just going to get an idea how much equipment, like a standing device, I might need, and EUREKA! My back felt strong, my knees were solid...oh, I will remember that day for a long time. 

In future posts I will tell you of my updated plan for walking. I am feeling like a million bucks right now. I feel vindicated. I KNEW I just needed a little help from the right person. I BELIEVED it.

2013 is going to be a very exciting year.

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