Monday, June 17, 2013

PLAYING THE MS CARDS DEALT

There is a new resident at my assisted living home who has SPMS. She looks close to my age and is in a power chair. We have spoken each time we pass in hall. I immediately told her I was gay, not what I usually lead with, but the people around her can be weird, and I wanted it out of the way.

She was totally okay with it. No elephant in the room, mostly she is into "here" talk, since she is new to this kind of a place. I'm doing my best to show her the ropes. Today she was crying in the lobby (Did I mention she also fell and has her leg in a cast--no fun.) and it was about transportation.

People with disabilities and the older population, AMERICA WAKE UP, transportation is a huge obstacle for us. My new friend was supposed to have her cast removed today, but our facility's van's lift broke. (A caregiver broke it--Grrr) She called Access Van's a company run by our county, and I had to use it for many years when I worked downtown--they are horrible. Bad drivers, terrible scheduling, inept in every way--that was my experience and that of anyone I ever knew who used them

They were so bad that our local news did an expose on them once. Then everyone gets upset, until they forget about it. I quit using them, but from what I have heard they have not improved.

So the woman with MS sat putting a puzzle together in our social room. I had gone there to try, for the first time, Karaoke. Great fun and I got the highest score. "Let's Stay Together," by Al Green and "You've Got A Friend," by James Taylor---for my new friend.

It is just so sad how our country treats us. She has several degrees, was a chemist of sorts, and her husband left her "because he couldn't deal with the MS." Life can deal such cruel cards.  I told her about our "handicapped cabs." She didn't know. Oh, it all boils my blood.

Shuffle. Deal. Repeat.

3 comments:

OldLady Of The Hills said...

There is a new resident at my assisted living home who has SPMS. She looks close to my age and is in a power chair. We have spoken each time we pass in hall. I immediately told her I was gay, not what I usually lead with, but the people around her can be weird, and I wanted it out of the way.

She was totally okay with it. No elephant in the room, mostly she is into "here" talk, since she is new to this kind of a place. I'm doing my best to show her the ropes. Today she was crying in the lobby (Did I mention she also fell and has her leg in a cast--no fun.) and it was about transportation.

People with disabilities and the older population, AMERICA WAKE UP, transportation is a huge obstacle for us. My new friend was supposed to have her cast removed today, but our facility's van's lift broke. (A caregiver broke it--Grrr) She called Access Van's a company run by our county, and I had to use it for many years when I worked downtown--they are horrible. Bad drivers, terrible scheduling, inept in every way--that was my experience and that of anyone I ever knew who used them

They were so bad that our local news did an expose on them once. Then everyone gets upset, until they forget about it. I quit using them, but from what I have heard they have not improved.

So the woman with MS sat putting a puzzle together in our social room. I had gone there to try, for the first time, Karaoke. Great fun and I got the highest score. "Let's Stay Together," by Al Green and "You've Got A Friend," by James Taylor---for my new friend.

It is just so sad how our country treats us. She has several degrees, was a chemist of sorts, and her husband left her "because he couldn't deal with the MS." Life can deal such cruel cards.  I told her about our "handicapped cabs." She didn't know. Oh, it all boils my blood.

Shuffle. Deal. Repeat.

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Webster said...

There is a new resident at my assisted living home who has SPMS. She looks close to my age and is in a power chair. We have spoken each time we pass in hall. I immediately told her I was gay, not what I usually lead with, but the people around her can be weird, and I wanted it out of the way.

She was totally okay with it. No elephant in the room, mostly she is into "here" talk, since she is new to this kind of a place. I'm doing my best to show her the ropes. Today she was crying in the lobby (Did I mention she also fell and has her leg in a cast--no fun.) and it was about transportation.

People with disabilities and the older population, AMERICA WAKE UP, transportation is a huge obstacle for us. My new friend was supposed to have her cast removed today, but our facility's van's lift broke. (A caregiver broke it--Grrr) She called Access Van's a company run by our county, and I had to use it for many years when I worked downtown--they are horrible. Bad drivers, terrible scheduling, inept in every way--that was my experience and that of anyone I ever knew who used them

They were so bad that our local news did an expose on them once. Then everyone gets upset, until they forget about it. I quit using them, but from what I have heard they have not improved.

So the woman with MS sat putting a puzzle together in our social room. I had gone there to try, for the first time, Karaoke. Great fun and I got the highest score. "Let's Stay Together," by Al Green and "You've Got A Friend," by James Taylor---for my new friend.

It is just so sad how our country treats us. She has several degrees, was a chemist of sorts, and her husband left her "because he couldn't deal with the MS." Life can deal such cruel cards.  I told her about our "handicapped cabs." She didn't know. Oh, it all boils my blood.

Shuffle. Deal. Repeat.

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Diane J Standiford said...

There is a new resident at my assisted living home who has SPMS. She looks close to my age and is in a power chair. We have spoken each time we pass in hall. I immediately told her I was gay, not what I usually lead with, but the people around her can be weird, and I wanted it out of the way.

She was totally okay with it. No elephant in the room, mostly she is into "here" talk, since she is new to this kind of a place. I'm doing my best to show her the ropes. Today she was crying in the lobby (Did I mention she also fell and has her leg in a cast--no fun.) and it was about transportation.

People with disabilities and the older population, AMERICA WAKE UP, transportation is a huge obstacle for us. My new friend was supposed to have her cast removed today, but our facility's van's lift broke. (A caregiver broke it--Grrr) She called Access Van's a company run by our county, and I had to use it for many years when I worked downtown--they are horrible. Bad drivers, terrible scheduling, inept in every way--that was my experience and that of anyone I ever knew who used them

They were so bad that our local news did an expose on them once. Then everyone gets upset, until they forget about it. I quit using them, but from what I have heard they have not improved.

So the woman with MS sat putting a puzzle together in our social room. I had gone there to try, for the first time, Karaoke. Great fun and I got the highest score. "Let's Stay Together," by Al Green and "You've Got A Friend," by James Taylor---for my new friend.

It is just so sad how our country treats us. She has several degrees, was a chemist of sorts, and her husband left her "because he couldn't deal with the MS." Life can deal such cruel cards.  I told her about our "handicapped cabs." She didn't know. Oh, it all boils my blood.

Shuffle. Deal. Repeat.

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